Online Support for TTTS
- 30-05-11
Twin to Twin Transfusion Syndrome is a devastating pre-natal condition that often causes the death of one or both babies. A new online support group for parents affected by TTTS is now available. TTTS Support is described as a safe haven to chat and meet other families affected by TTTS, as well as a source of information. Below we hear from the founder of this support group:
My name is Shannon and I am the founder of an online Support Group for TTTS.
I lost both of my daughters 5 months ago. I saw my doctor every week.
On my website, I have been posting as much information as possible from fellow TTTS mothers, so that everything is compiled in one spot to help anyone with any need regarding TTTS.
I’d like to encourage you to join. It’s free and everyone who is a part of the group has suffered TTTS in some way or another. There is a chatroom, and you create your own profile. The profile questions are optional to answer but I encourage people to answer them. There is also a search option so you could search for people who gave specific answers to the profile questions. There are groups, events, blogs, photos, videos, and lots of other information. We are currently adding information tabs but already have a lot of useful ones up there.
I have been learning how to LIVE through my grief for 5months. That doesn't sound like a lot of time but I have been working very hard every day to find ways to memorialize my babies, and to also help others. I’m so sorry for your loss.
Message me anytime you ever need to talk at Sklipstein@TTTSupport.com and please stop by my website www.TTTSupport.com (it is a private site so I will have to approve your profile for you to enter... just fill out the information and when I get the request I will approve you so you can get started). It is private because I want people to feel it's safe to say whatever they want or how they feel.
Shannon
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